First of all, I promise that this kid does smile--just not for the camera!
At Sadie's last appointment, she was an incredible 13 lb. 6 oz. and 23 inches long! She's come so far, but she still has a long way to go. With persistent cloaca her bowel and bladder communicate. So recently, Sadie has had urine coming out of her mucus fistula (the opening to the lower part of her bowel). Dr. Rink told us that this can be expected. He wanted to check some bloodwork to make sure her bowel wasn't reabsorbing the excess sodium, etc. that her bladder should be emptying. That could impact her acid-base balance. When she had her blood drawn we discovered that she is anemic, so she is now taking an iron supplement. Her pediatrician recommended that she start drinking some prune juice to keep her from getting constipated. Apparently, we have a potential picky eater on our hands! She refused the prune juice and shot us a look like we were the worst family in the world. We tried repeatedly, and she refused repeatedly. So we tried apple juice with the same results. I decided to try baby food prunes with a spoon. You can see how that's going, though we try at least once a day. (I don't think we're going to see any results, unless prunes can be absorbed through the skin.) Otherwise, things are going great--we heard Sadie's first big belly laugh last week!
We have a surgery date: Sept. 22 at 9 am.
Sadie will be admitted on the 21st for bowel prep. This surgery is called a PSARVUP (posterior sagittal anorectovaginoureteroplasty). The goals of this surgery are to put everything back together, achieve continence, and allow her the ability to concieve when she's an adult. Basically the urologist and surgeon will go in together and see what her internal anatomy looks like and reform the channels that should be there. The combined surgery will take about seven hours, and she'll be in the hospital for about a week. She will go in a couple of months later and have her vesicostomy and colostomy reversed. When it's all said and done she will have about six surgeries. Then, when it's time to potty-train we'll be able to determine if anything further will need to be "tweaked." She will also be having an MRI of her spine to determine how her syrinx will impact her development, or if it will have any impact at all.
As for the rest of us, Elena's looking forward to the end of school--3 days left! Chris is going to the Indianapolis 500 tomorrow, as we do every year. One of his friends is taking my ticket, since I'm not sure how to make breastfeeding work while watching the greatest spectacle in racing. Chris and I are just plugging forward, working, and preparing for round 2 at Riley.